About me

I’m a writer, a retired pediatrician, a husband of nearly 40 years, a father of two grown children, and, since 2020, a person with Parkinson’s (PwP). My symptoms started well before I was diagnosed, though, meaning that for years and perhaps decades I was a Person Who Didn’t Know He Had Parkinson’s (PwdkhhP)… like most of us later-onset PwPs, I imagine.

I wanted to be a teacher before I became a pediatrician. Looking back, I see that that’s what I became after all—pediatrics is all about teaching. It’s about breaking down sometimes complex medical and scientific concepts into simple, comprehensible explanations…and then pitching those explanations to everyone from inquisitive kindergartners to frightened parents of tiny premature infants.

I got pretty good at it, and it’s in that spirit of demystifying often-complex Parkinson’s concepts—everything from the basic science of the disease, to epidemiology, genetics, treatment, and more—that I’ll approach this blog.

And I’ll warn potential readers–I’m prone to going down rabbit holes I find interesting. That’s how I learned, while writing my book Birth Day, that the first successful cesarean section was performed by a 19th-century woman masquerading as a male British Army surgeon, and that not all of Henry VIII’s wives got their heads chopped off. (Two of them died of childbirth complications.) Hopefully, you’ll enjoy my sometimes random digressions.

Personal Fun Fact:

I’m not McSteamy. I’m not Dick Van Dyke, either.

Biggest writing accomplishment:

My book, Birth Day: A Pediatrician Explores the Science, the History, and the Wonder of Childbirth, was published in early 2009 by Ballantine Books. It’s partly a memoir (I dragged many a family member into my story), partly an exploration of how humans came to give birth in the strange way that we do, and partly about the historical events that have shaped, and been shaped by, the birth of a child. There’s a lot of humor mixed in, too. Birth Day got great reviews—from the Washington PostThe Journal of Midwifery and Women’s Health, the New England Journal of Medicine, the San Francisco Chronicle, and many other publications. Birth Day was a Northern California Book Awards finalist, and was named a “Top 10 Science Book of 2010” by the Japan Financial Times. (Yes, there’s a Japanese edition. And no, I can’t read it.)

Biggest sports accomplishment:

I was once ranked in the top 50 in the world in that most glamorous of sporting events, the shot put. Granted, this was an age-group thing (I was 60, a relative youngster among my fellow 60-64-year-old competitors), I finished exactly 50th (right between beefy, middle-aged guys from Ireland and Latvia),and there were only about 150 men my age in the world that year still tossing around cannonballs for fun. Which, if you were grading my performance, means I’d get a B-minus or so. Still, I can truthfully say that I once ranked in the top 50 worldwide in something. I’ll probably have that carved on my tombstone.

More about the arcane world of senior shot-putting later…

Biggest pediatric accomplishment:

I loved the continuity that came with practicing pediatrics in one place for a long time. By the time I retired I was taking care of my “grandpatients”—the children of my grown-up patients, some of whom I’d known since they themselves were in the womb. It was a privilege to be a part of so many lives over so many years, both in sickness and in health.

Oh, and I never dropped any kids on their heads. (I’ll probably have that carved on my tombstone, too.)

Welcome to “A Moving Disorder”!

I’m a writer and retired pediatrician, and the unlucky recipient of a 2020 diagnosis of Parkinson’s Disease. There are a lot of us PwPs (People with Parkinson’s) out there – an estimated 500,000 to 1 million Americans live with this disease. I hope to reach the PwP community, including those with the disease, their loved ones, and caregivers, and also anyone interested in science, history, oddball research, rabbit holes and, yes, even humor.

Because there’s more to life than Parkinson’s…

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Why “A Moving Disorder”? Isn’t Parkinson’s disease a movement disorder? 

True, Parkinson’s is classified as a “movement disorder,” defined as “a group of nervous system conditions that cause either increased movements or reduced or slow movements.” But the word “movement” strikes me as too static in this case, too stuck-in-one-place. Too much noun and not enough verb.

Take the definitions of “movement” and “moving.” Movement: “The act or process of moving.” Moving: “To be in motion.” It’s a subtle difference, but a real one, and a key to living with Parkinson’s.

Parkinson’s disease is a progressive disorder, with some good days and some bad days, its symptoms waxing and waning, always on the move. It’s the same for those of us who live with this disease—we’re moving­ to try to slow the progression, to beat back the disease, to feel more like our old selves, if only for a while. Dance, boxing, tai chi, yoga, running, strength training, etc., etc.—it’s all about keeping in motion. Moving.

And then there’s another meaning to moving: “Producing strong emotion, especially sadness or sympathy.” There’s no way around that one. People with Parkinson’s and their caregivers often encounter sadness—the emotions that come with diminished physical and mental capacities, your own or those of a loved one. But sadness doesn’t have to be the dominant emotion. There’s still joy and humor to be had.  

So…it’s A Moving Disorder. Okay?

I hope you’ll enjoy my blog. I plan to focus on Parkinson’s—the science of the disease, its history (James Parkinson was a fascinating fellow!) and my personal experiences and reflections. I’ll write about random things that interest me, too—there’s a lot more to life as a PwP than worrying about my nervous system going haywire…  

I hope to hear from you, too, whether you’re a Person with Parkinson’s, a friend or relative of a PwP, or just someone who likes to read about science, history, and personal musings. Please write!

My email address is mpjsloan@amovingdisorder.blog.

Thanks!

Mark Sloan MD

Santa Rosa, California